Excellent News! Alli has recovered from her episode last week and didn't require intubation. A sure sign that we are heading in the right direction. She is still alternating between the high flow oxygen and the bi pap. She wears the high flow oxygeny cannula during the day and the bi pap at night. As of today, she is on 10L of 80% oxygen through the cannula and her settings are relatively low on the bipap.
Currently she is back up in her chair taking a snooze after an amazing morning of therapy. She had speech this morning, followed by a multidisciplinary session with PT and OT. She was lifting her head during some tummy time, rolling side to side, and making some great vocalizations. We are so excited to see her regaining some personality. An EEG and an ECHO are scheduled for this week. The EEG is to see how she is handling the reduction in one of her seizure medications. If it looks ok, then we will hopefully come down some more. The ECHO is just to check in on her heart and the relative function.
Will continue to update as things evolve. Hope everyone is having a good week!
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