Sisters

Sisters

Saturday, September 21, 2013

Gosh, I think the last time I posted Alli was on her way to rehab.  Yikes!  Alli did make it to rehab.  She spent two weeks there.  The first week  Alli still had a lingering fever, so she underwent a battery of tests in addition to her therapies.  The second week was more focused on therapy.  Unfortunately, we were not able to recover her back to the baseline that she was at before she got sick this last time.  

Since she has been home she has had 24 hour nursing care.  We have taken her to a few follow up appointments with the most critical specialists - pulmonology, cardiology, neurology, and she will follow up with endocrinology later this week.  She has had an outpatient assessment in the Scottish Rite feeding clinic and with the physical therapist.  At this point, no one is overly optimistic about her ability to recover from this most recent setback.  She has suffered numerous insults to her brain and lungs.

She is currently on bipap 24 hours a day and will remain this way until we are able to retest her carbon dioxide level - likely on Monday.

On a happier note, Josh has started eating solid food.  So far he has had banana, sweet potato, avocado, mango, pear, and oatmeal.  He loves to eat!  It was as if he was studying the art of eating for the weeks leading up to that first bite off of the spoon.  He took it like a champ.  I am getting back in to the swing of things with my magic bullet and Super Baby Food.  So far the only thing he hasn't appreciated is the texture of the sweet potato so I mixed it with banana and he was good to go.    He is rolling in both directions, sitting with support, and hanging out in his baby einstein activity bouncer.  I swear he started to say mum mum mum the other day, but that could just be wishful thinking.  He definitely babbles a good bit.

Samantha is enjoying school and loves her new teacher, Miss Cara.  On Monday she will start her first gymnastics class at the YMCA by our house.  This will be her first organized activity outside of school.  I am eager to see how she does.  I was hoping to get her in to soccer, but missed the registration deadline.  She continues to keep us in stitches with her dancing and funny one liners.  She is a great big sister and loves to spend time in Alli's room with Alli and the nurse.  The nurses have been wonderful with her.

As some of you know, the weekend after Alli came home, we had Joshua and Alli baptized.  We had the baptism in the chapel at Scottish Rite.  The ceremony was performed by the deacon at my church.  Below are a couple of pictures.  It was such a special day.  I am so happy we were able to pull it off.

Please continue to keep Alli in your prayers and we will continue to keep all of you in ours.

Have a great week!