Sisters

Sisters

Wednesday, May 29, 2013

Well, I should have written my update sooner. Alli had several good days in a row. She has been making great strides with PT and OT. She was starting to vocalize, roll side to side, and put her hands in her mouth. She had a blue mat in her room that we were using to get down on the floor and play with her. It was so nice to be able to interact with her on her level. We were steadily coming down on the high flow oxygen. We were even starting to discuss rehab again. Then, yesterday after PT she spiked a high fever and her heart rate elevated to over 200. At the time her chest X-ray and labs were clear, however, as of this afternoon, her white blood cell count was elevated and she spiked another fever. So, they are trying to determine the source of her infection. As a result of this, she was put back on bipap this afternoon because she couldn't keep her sats up. They are currently treating her with vancomycin and xosin, which are broad spectrum IV antibiotics.

Prior to all of this, we had a great weekend. My dad was able to catch a ride to Atlanta with my cousin and her daughter. He spent some good quality time with Alli and we celebrated his birthday. It was nice having him here. He always finds a few things to help us with around the house, which is very much appreciated.

Josh is growing like a weed and starting to sleep some longer stretches at night. He is cooing and has started to bring his hands and some toys to his mouth. He engages in great vocal play with my mom...nice to have an SLP in the family :). He is also starting to laugh and has such a great smile. He lightens the mood when things get stressful.

Samantha finished school for the summer. She had a great year and we look forward to what the next year will bring for her. She is making friends in our neighborhood. Her buddy Jack, whom she met at school, I am told is quite smitten with her. He lives around the block from us and they play together a couple of times each week.

We'll keep you posted as things continue to evolve with Alli. Thanks for all of the prayers, love, and support!

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