October 20, 2013

If all things continue to go well, Alli will go home tomorrow.  She was transferred to the TICU (technology dependent intensive care unit) on Friday afternoon.  They sent her here instead of sending her to the normal patient floor.  She is almost back to her baseline and expect she will be there tomorrow.

So...what happened.   We determined the cause of her vomiting was attributed to her j-tube being coiled  and drawn back from the intestine.  This was causing her feeds to back up in to her stomach and then the associated gagging and retching.  Since her G/J tube was replaced, she has tolerated her feeds and we have been able to wean her almost all the way back to where she was on her day time oxygen and bipap routine.

We had an otherwise uneventful weekend.  Both Samantha and Joshua were recovering from croup, so we missed two birthday parties, but decided to spare the other families the joy of croup.  Below is a picture of Samantha and Josh from this morning.  I call it "the Princess and the Pea"

This week we are preparing for Samantha's 4th birthday, which is October 28.    It will be so nice to celebrate with her!  More to come on the festivities...