Her sats have been in the 90s all morning and she is currently down to a half liter of oxygen. They have started her feeds as of this morning. She is currently getting 10 mL per hour and they will increase by 10 every eight hours until they get to 30 mL per hour. She has been pretty groggy and sleepy today, which I expected given yesterday's activities. I am hoping to see her perk up later tonight or by tomorrow. She is due to be transferred to the cardiac step down unit today, pending an available bed. Will update more when we have more information.
So, we transferred to the step down unit as planned yesterday. Alli was pretty groggy and sleepy, partially I think from the stress of the procedure and partially from the Tylenol with codeine they gave her for pain. Today she has been somewhat more reactive, but still pretty out of it. I learned how to insert her g-tube in case of emergency. We had a brief visit with one of our favorite PTs at Egleston. Alli also had a short echocardiogram to check her heart function as compared to her last echocardiogram. There were no remarkable differences between the two. We are looking forward to some more of her personality coming out tomorrow. Everyone else is doing well. Samantha has been entertaining my parents and is off painting pumpkins this afternoon with one of her gal pals from school and Megan, our nanny. Jason and I are splitting shifts at the hospital, but look forward to getting everyone back under one roof.
Today has been a quiet day. We went up on Alli's seizure medicine yesterday, which usually makes her pretty sleepy. We did play a little throughout the afternoon. Nanny and Grandpa brought her some of her favorite toys from home. Attached is a picture of her stretching out. The other picture is of her g-tube button...for those who are curious about what it looks like.
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